In 1925, Sukhareva clearly described older boys who were writing for a school newspaper in a great literary style, playing musical instruments, creating art, connecting deeply with nature and select individuals, and holding on to their ethical principles. They also had sensory sensitivities, limited motor coordination, intense idiosyncratic interests, and difficulties with socializing.
We in the autism science and advocacy community were just appalled at the way he went about selecting members. The current committee has been hijacked by a narrow ideological agenda that does not reflect either the broad autism community or the state of autism science.
Polyvagal theory, introduced in 1994 by psychologist Stephen Porges, highlights the role of the autonomic nervous system in regulating our health and behavior. Our lived experience of engaging with the world is impacted by external environmental cues, internal physical sensations, and relational experiences (e.g., an impression of connection, safety, and trust between individuals). Neuroception is our body's unconscious surveillance system that shifts us into one of three autonomic states needed to respond to a situation: rest-and-digest (social and safe), fight-or-flight (mobilization), or shutdown/collapse (immobilization).
Developmental disabilities are actually quite common. In the United States, about 1 in 6 children has a developmental disability (CDC, 2024). Intellectual and developmental disabilities (IDD) are a group of neurodevelopmental conditions usually present at birth that affect the trajectory of a person's physical, intellectual, and/or emotional development (National Institute of Child Health and Human Development, 2021). Conditions such as Down Syndrome, Autism, Fragile X, Cerebral Palsy, and others are examples of intellectual or developmental disabilities.
In 2013, when Meredith O'Connor was 16, the music video for her debut single "Celebrity" went viral. Afterward, she channeled her own stardom into championing childhood mental health: As a hyperactive kid, O'Connor says she was often the subject of bullying, and when her music career gave her a platform, she was eager to use it to advocate on behalf of other victims. "I knew my fan base was younger, but I didn't know how many people would resonate with mental health challenges," she says. "I realized there were millions of gifted people that are being marginalized, and that's when I really wanted to start the mental health study."
