#genetic-data-privacy

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#linkedin
Privacy professionals
fromComputerworld
9 hours ago

Questions raised about how LinkedIn uses the petabytes of data it collects

LinkedIn users should limit identifiable data exposure and treat the platform as potentially hostile until BrowserGate allegations are verified.
Law
fromArs Technica
14 hours ago

LinkedIn scanning users' browser extensions sparks controversy and two lawsuits

LinkedIn faces lawsuits alleging lack of user consent for data collection practices.
Privacy technologies
fromTNW | Insights
3 days ago

LinkedIn secretly scans 6,000+ browser extensions and fingerprints your device

LinkedIn's hidden JavaScript routine collects extensive user data without disclosure, raising concerns about covert surveillance practices.
#data-privacy
Privacy technologies
fromArs Technica
15 hours ago

How our digital devices are putting our right to privacy at risk

Digital convenience comes at the cost of personal data privacy, raising concerns about its potential use against individuals by law enforcement.
Privacy professionals
fromwww.theguardian.com
3 weeks ago

Confidential health records from UK BioBank project exposed online

UK Biobank researchers have repeatedly exposed confidential health data online, creating privacy risks despite the absence of direct identifiers in the leaked files.
fromThe Washington Post
17 hours ago

Customs wrongly canceled Harvard scientist's visa over frog embryos, judge rules

U.S. District Judge Christina Reiss ruled that the government unlawfully canceled Petrova's J-1 visa, stating that the government failed to cite any authority allowing Customs and Border Protection officers to cancel the visa for failing to declare the embryos.
US news
Public health
fromNew York Post
16 hours ago

New Yorkers issued stark warning about opening 'Pandora's box' of doctor-assisted suicide: 'Like a holocaust'

New Yorkers should prepare elderly relatives for potential risks associated with the legalization of Physician Assisted Suicide.
Healthcare
fromwww.independent.co.uk
1 day ago

Radiographer pulled down patient's shorts without permission

The Independent provides critical journalism on various issues, emphasizing the importance of accessible reporting without paywalls.
Medicine
fromThe New Yorker
14 hours ago

Are Unapproved Peptides Worth the Risk?

Peptides are short chains of amino acids that may enhance strength and recovery, but their safety and efficacy in humans are largely unknown.
OMG science
fromNature
2 days ago

This method to reverse cellular ageing is about to be tested in humans

Yuancheng Ryan Lu's research on reprogramming retinal nerve cells could lead to restoring eyesight and rejuvenating organs.
Parenting
fromComputerWeekly.com
1 day ago

Tech can't wait for regulation to protect children online | Computer Weekly

Harmful online content for children results from profit-driven algorithms, not parenting or education failures.
Agriculture
fromwww.theguardian.com
1 day ago

Scientists develop gene-edited wheat that can make toasted bread less carcinogenic

Gene-edited wheat reduces carcinogenic acrylamide levels in toasted bread without affecting crop yields.
Health
fromThe Washington Post
4 days ago

One way to live longer: Win the genetic lottery

Genetic factors account for about 50% of human lifespan, significantly higher than the previously estimated 20%.
Science
fromFast Company
2 days ago

Can artificial intelligence be governed-or will it govern us?

The advent of nuclear power marked a significant shift in technology, necessitating careful consideration and regulation to prevent recklessness.
#ai
fromFast Company
2 days ago
Medicine

AI is coming for superbugs

AI can significantly enhance antibiotic discovery, addressing the urgent global health crisis of antibiotic resistance.
Privacy technologies
fromComputerWeekly.com
6 days ago

Identity and AI: Questions of data security, trust and control | Computer Weekly

AI-driven identity solutions improve access control but raise compliance, privacy, and ethical concerns that organizations must address.
Medicine
fromFast Company
2 days ago

AI is coming for superbugs

AI can significantly enhance antibiotic discovery, addressing the urgent global health crisis of antibiotic resistance.
Privacy technologies
fromComputerWeekly.com
6 days ago

Identity and AI: Questions of data security, trust and control | Computer Weekly

AI-driven identity solutions improve access control but raise compliance, privacy, and ethical concerns that organizations must address.
Medicine
fromNature
1 day ago

Saturation editing of RNU4-2 reveals distinct dominant and recessive disorders - Nature

De novo variants in RNU4-2 cause ReNU syndrome, a neurodevelopmental disorder characterized by developmental delays and other severe symptoms.
Privacy professionals
fromPCMAG
3 days ago

Use Perplexity? Lawsuit Accuses It of Sharing Personal Data With Google and Meta Without Permission

Perplexity faces a lawsuit for allegedly sharing user data with Google and Meta without consent, violating privacy rights.
fromTheregister
5 days ago

NHS staff resist using Palantir software

One official reportedly described Palantir as 'ethically bankrupt' in justifying his refusal to use the software, and noted that he knows of coworkers who deliberately slow their work pace when forced to use the system.
EU data protection
#genomics
fromNature
1 week ago
Science

The 1000 Chinese Pangenome empowers medical and population genetics - Nature

fromNature
1 week ago
Science

The 1000 Chinese Pangenome empowers medical and population genetics - Nature

Artificial intelligence
fromFast Company
1 day ago

BadClaude: Serious ethics issues arise as users abuse Anthropic AI with slurs and a digital whip

Users are encouraged to be rude to AI chatbots for better responses, exemplified by the creation of a tool called 'BadClaude'.
#crispr
Privacy professionals
fromZDNET
6 days ago

I turned to PrivacyBee to clean up my data - here's how it made me disappear

PrivacyBee is preferred for its comprehensive data removal services and user-friendly management tools.
Mobile UX
fromGSMArena.com
2 weeks ago

Perplexity can now answer medical questions based on your Apple Health data

Perplexity Health provides personalized, evidence-based medical information by aggregating data from various health platforms and ensuring accuracy through expert oversight.
Digital life
fromwww.theguardian.com
2 weeks ago

Thousands of people are selling their identities to train AI but at what cost?

Individuals are monetizing their everyday activities by contributing data for AI training, creating a new global data economy.
#cloning
Science
fromFuturism
1 week ago

A Startup Has Been Quietly Pitching Cloned Human Bodies to Transfer Your Brain Into

Cloning efforts have evolved from animals to controversial human embryo models, with ambitions for brainless human clones for organ transplants.
OMG science
fromNature
2 weeks ago

Can a mouse be cloned indefinitely? Decades-long experiment has answers

Asexual reproduction in mice is unsustainable due to accumulating mutations, limiting the potential for successful cloning.
Science
fromFuturism
1 week ago

A Startup Has Been Quietly Pitching Cloned Human Bodies to Transfer Your Brain Into

Cloning efforts have evolved from animals to controversial human embryo models, with ambitions for brainless human clones for organ transplants.
OMG science
fromNature
2 weeks ago

Can a mouse be cloned indefinitely? Decades-long experiment has answers

Asexual reproduction in mice is unsustainable due to accumulating mutations, limiting the potential for successful cloning.
fromenglish.elpais.com
5 days ago

Parents' umbilical cord dilemma: Donate or preserve, even if it may never be used

The probability that frozen tissue will benefit the person who froze it is remote. The chance of developing acute lymphoblastic leukemia, the most common childhood cancer, currently stands at one in 20,000.
Medicine
fromSlate Magazine
3 weeks ago

Jeffrey Epstein Had an Obsession With DNA. It's Part of a Dark History.

A strange part of the strange life of Jeffrey Epstein was his obsession with the genome. And with ways to "improve" that genome-including by adding more of his own genes to humanity's gene pool. Epstein, culpable for so much, was also a believer in eugenics, the manipulation of reproduction and of genes to create "better" humans.
Right-wing politics
#ai-ethics
fromwww.scientificamerican.com
6 days ago
Artificial intelligence

Anthropic leak reveals Claude Code tracking user frustration and raises new questions about AI privacy

Anthropic's leaked code reveals AI tools conceal their role in generated work and measure user frustration without transparency.
#23andme
EU data protection
fromwww.cbc.ca
1 week ago

Settlement approved for Canadians affected by past 23andMe data breach | CBC News

A $3.25 million settlement has been approved for Canadian customers affected by a 2023 data breach at 23andMe.
fromTechRepublic
1 month ago
Information security

23andMe Data Breach Settlement Deadline Is Near: Here's How Much You Could Get - TechRepublic

EU data protection
fromwww.cbc.ca
1 week ago

Settlement approved for Canadians affected by past 23andMe data breach | CBC News

A $3.25 million settlement has been approved for Canadian customers affected by a 2023 data breach at 23andMe.
fromTechRepublic
1 month ago
Information security

23andMe Data Breach Settlement Deadline Is Near: Here's How Much You Could Get - TechRepublic

Privacy professionals
fromThe Verge
6 days ago

Pinterest said he violated laid-off colleagues' privacy. Now he's going public

A former Pinterest engineer claims he was unjustly fired for sharing a tool that revealed employee layoffs.
Medicine
fromFast Company
6 days ago

The AI drug revolution is real but the hype around it isn't

AI may revolutionize drug discovery, but it cannot simplify the complexities of human biology or guarantee successful treatments.
fromwww.theguardian.com
3 weeks ago

Two plasma donors die at private Canadian clinics under federal investigation

Two people have died in Canada after donating plasma at a chain of clinics that has been under scrutiny by federal inspectors for failing to keep accurate records, screen donors or maintain its machines. While experts say the deaths are exceedingly rare, critics say Canada's embrace of private companies to handle blood products reflects a slow collapse of a system that has been the envy of the world.
Canada news
fromwww.bbc.com
1 week ago

'Something wasn't right': Wrong sperm given to UK families by IVF clinics in Northern Cyprus

"It was pretty soon after James was born that I knew something wasn't right," says Laura. After nearly a decade of worrying, Beth and Laura decided their children should take a DNA test. The results indicated neither child was related to the sperm donor their parents had selected."
Medicine
Cancer
fromMail Online
1 month ago

CIA backlash after hidden document hints at possible cancer cure

A declassified 1951 CIA document summarizes Soviet research identifying biochemical similarities between parasitic worms and cancerous tumors, suggesting potential shared treatment approaches.
fromIndependent
1 week ago

'It's a huge amount of money': Modern fertility medicine is a miracle - but it's also a booming business

Since the first IVF baby was born in 1978, technological advancement of reproductive medicine has enabled millions to have children, marking a significant milestone in medical history.
Medicine
fromNextgov.com
3 weeks ago

Tech bills of the week: Improved biological data for research; Section 702 reform; and more

Ushering in the Golden Age of Innovation is about more than just winning the global tech race - it's about securing the safety and prosperity of our country for generations to come. Our bill is an important step in this effort and will better ensure the United States has the infrastructure in place to lead the 21st century.
EU data protection
Miscellaneous
fromComputerworld
1 month ago

Researchers warn about ChatGPT's new health service

ChatGPT Health fails to recommend emergency care in over half of cases where hospitalization is necessary, particularly with complex or ambiguous symptoms.
Left-wing politics
fromTruthout
1 month ago

Reproductive Tech That Promises Smart Babies Is Peddling Soft Eugenics

Reproductive tech companies now offer embryo genetic screening for intelligence and disease, raising concerns about eugenics, disability discrimination, and wealth-based genetic enhancement.
fromwww.theguardian.com
1 month ago

I clicked on a button and everything changed': how a DNA test turned my life upside-down

It was another detail that the rest of the family apparently knew but had never told me; they thought I already knew. The biology mattered less to me than the secret. Dad had been adopted, it turned out. A classic affliction of the 1950s, in which young, unmarried couples were forced to give away their newborn babies.
Books
Medicine
fromwww.bbc.com
2 weeks ago

Scotland becomes first in UK to test newborns for rare genetic condition

Scotland is the first UK region to test newborns for Spinal Muscular Atrophy, enabling early treatment to improve life expectancy.
Cancer
fromenglish.elpais.com
1 month ago

Three sisters and a dilemma: what to do when you inherit a genetic mutation that can cause cancer

Three sisters discovered they carry the BRCA1 gene mutation, which significantly increases breast and ovarian cancer risk, after their cousin's rapid cancer diagnosis prompted family genetic testing.
Miscellaneous
fromInfoQ
1 month ago

Busting AI Myths and Embracing Realities in Privacy & Security

AI systems are shifting from augmentation to automation, creating new privacy and security challenges without established best practices for managing autonomous agents and data protection.
Artificial intelligence
fromwww.npr.org
4 weeks ago

ChatGPT might give you bad medical advice, studies warn

AI chatbots provide medical information to millions daily but often mislead users because people lack training in effectively communicating symptoms to these systems.
fromFortune
1 month ago

The immortal life of Henrietta Lacks lawsuits gets a bit shorter with Novartis settlement | Fortune

Doctors at Johns Hopkins Hospital took Lacks' cervical cells in 1951 without her knowledge, and the tissue taken from her tumor before she died became the first human cells to continuously grow and reproduce in lab dishes. HeLa cells became a cornerstone of modern medicine, enabling countless scientific and medical innovations, including the development of genetic mapping and even COVID-19 vaccines, but the Lacks family wasn't compensated along the way despite that incalculable impact on science and medicine.
Healthcare
Privacy technologies
fromPrivacy International
1 month ago

Nowhere to Hide? Privacy Risks and Policy Implications of AI Geolocation

Vision-Language Models can accurately determine photo locations without GPS data, creating serious privacy and human rights risks including surveillance, doxxing, and discriminatory policing.
Privacy professionals
fromeuronews
1 month ago

Meta faces lawsuit over AI smart glasses privacy breach

Meta faces a US lawsuit alleging false advertising and privacy violations over AI smart glasses, following reports that Kenyan subcontractor employees reviewed private customer footage including sensitive content.
World news
fromSFGATE
2 months ago

Jeffrey Epstein's assistant ordered so many DNA kits, the company asked why

Jeffrey Epstein's assistant ordered 30 23andMe DNA kits for Sultan Ahmed bin Sulayem to distribute to co-workers, triggering a company inquiry and expedited shipment to Dubai.
fromArs Technica
1 month ago

Have we leapt into commercial genetic testing without understanding it?

Martschenko's argument is largely that genetic research and data have almost always been used thus far as a justification to further entrench extant social inequalities. But we know the solutions to many of the injustices in our world-trying to lift people out of poverty, for example-and we certainly don't need more genetic research to implement them. Trejo's point is largely that more information is generally better than less.
Science
Marketing tech
fromAdExchanger
2 months ago

For Ancestry, The Biggest First-Party Data Challenge Is Knowing How To Use It Responsibly | AdExchanger

Ancestry prioritizes scalable ad systems that protect user trust over aggressive ad revenue, tailoring experiences by engagement levels across its network.
US politics
fromprivacyinternational.org
2 months ago

The Trump Administration wants your DNA and social media

U.S. CBP proposed mandatory collection of extensive personal data from visa-free travellers, including social media, contact histories, biometrics and DNA via government mobile apps.
Philosophy
fromApaonline
2 months ago

The Moral Life of Organs in an Age of Technological Innovation

Transplant technology is rapidly expanding organ viability through advanced perfusion, preservation, and logistics while implementation outpaces oversight and public input.
fromFortune
1 month ago

Desperate federal investigators weigh using DNA genealogy websites for Nancy Guthrie case | Fortune

The strategy could be fruitful: If unidentified DNA evidence can be connected to someone - even a distant relative - in a common genealogy database, it would give investigators more information and possibly lead to a suspect in Guthrie's kidnapping in Arizona. "It's a fantastic tool," said Ruth Ballard, a geneticist in California who specializes in DNA and has testified in hundreds of court cases. "If it's a good quality sample and they're able to get a profile, they could find a hit on that fairly quickly."
US news
fromPsychology Today
2 months ago

Worrisome Thoughts About Sex During Donor Conception

When fertility treatment leads to IVF with donor eggs, sex may have dropped off significantly. By this point, intimacy has often been under strain for some time. While this path can hold real hope of completing one's family, with many hurdles and no guarantees, it also adds another layer of pressure and emotional labor-helping explain why sex may have receded, not because desire is gone, but because sex has been tied to stress for too long.
Mental health
fromThe Verge
2 months ago

Giving your healthcare info to a chatbot is, unsurprisingly, a terrible idea

Every week, more than 230 million people ask ChatGPT for health and wellness advice, according to OpenAI. The company says that many see the chatbot as an "ally" to help navigate the maze of insurance, file paperwork, and become better self-advocates. In exchange, it hopes you will trust its chatbot with details about your diagnoses, medications, test results, and other private medical information.
Health
#healthcare-ai
fromNature
1 month ago

AI tools can design genomes. Will they upend how life evolves?

Biology is undergoing a transformation. After centuries of studying life as it evolves naturally, researchers are now using a combination of computation and genome engineering to intervene, generating new proteins and even whole bacteria from scratch. The use of artificial-intelligence tools to design biological components, an approach known as generative biology, is set to turbocharge this area of research. Just last year, scientists used AI-assisted design to produce artificial genes that can be expressed in mammalian cells.
Science
fromMedium
1 month ago

Surveillance by default, consent by assumption

When presence becomes participation Ring's Search Party feature queries nearby cameras when a missing pet is reported. As Senator Ed Markey observed, this closely resembles neighbourhood-scale surveillance infrastructure. Crucially, Search Party does not operate in isolation. Ring's Familiar Faces feature applies facial recognition to anyone passing within camera range, continuously scanning and categorising faces without their explicit knowledge or agreement.
Privacy technologies
Information security
fromSecuritymagazine
2 months ago

Strong Privacy Requires Strong Security - and GenAI Raises the Stakes

Privacy and security must be integrated, with technical, procedural, and cultural controls enforcing privacy commitments through strong security fundamentals.
Health
fromTheregister
2 months ago

ChatGPT Health wants access to sensitive medical records

ChatGPT Health can access personal medical data to assist health management and suggest questions while explicitly avoiding diagnosis and treatment.
Public health
fromNature
2 months ago

Nationwide genetic screening proves effective at catching disease risk early

Early genetic screening in young adults can identify hereditary cancer and familial hypercholesterolaemia risk before symptoms, but generalizability and cost-benefit require evaluation.
Health
fromTechCrunch
2 months ago

Google removes AI Overviews for certain medical queries | TechCrunch

Google removed some AI-generated Search overviews for liver test queries after those overviews provided potentially misleading, non-personalized reference ranges.
Public health
fromwww.theguardian.com
2 months ago

Dangerous and alarming': Google removes some of its AI summaries after users' health put at risk

Google removed AI-generated health summaries after misleading liver-test ranges risked patient harm by presenting numbers without necessary clinical context or demographic adjustments.
Science
fromWIRED
2 months ago

He Went to Prison for Gene-Editing Babies. Now He's Planning to Do It Again

He Jiankui created the first gene-edited babies, was jailed and banned, and now seeks to resume controversial genetic research despite widespread germline-editing prohibitions.
Health
fromFuturism
2 months ago

OpenAI Launches ChatGPT Health, Which Ingests Your Entire Medical Records, But Warns Not to Use It for "Diagnosis or Treatment"

AI chatbots often give inaccurate, potentially dangerous health advice, and new personalized features risk amplifying misuse despite disclaimers.
Public health
fromwww.bbc.com
1 month ago

Why are fewer people donating their organs?

Organ transplant demand in the UK has risen to over 8,000 waiting patients while donor consent rates have stagnated and family vetoes increasingly block donations.
Privacy technologies
fromInfoQ
2 months ago

Tracking and Controlling Data Flows at Scale in GenAI: Meta's Privacy-Aware Infrastructure

Meta expanded privacy infrastructure to embed privacy controls across data storage, processing, and generative AI workflows to enforce policies at scale.
Privacy professionals
fromPrivacy International
2 months ago

A Call for Class Action: how people are reclaiming control over their health data

Class actions in the US are increasingly used to hold companies accountable for exploiting highly valuable health data, creating financial incentives to change corporate behavior.
Medicine
fromThe Atlantic
1 month ago

Their Mutated Genes Were Supposed to Be Harmless

People who carry single-gene mutations for disorders like thalassemia can experience real health effects, including lethargy and fainting, despite being labeled asymptomatic.
Science
fromNature
2 months ago

Now is not the time to defund human fetal tissue research

Restricting federal funding for human fetal tissue research will impede development of replacement technologies and slow discovery of new medicines.
Medicine
fromThe Verge
2 months ago

Google pulls AI overviews for some medical searches

Google gave dangerous medical misinformation: advising pancreatic cancer patients to avoid high-fat foods and providing false liver function test information that could harm patients.
fromEntrepreneur
2 months ago

Why Protecting Your AI Data Should Be a Top Priority

The breakneck pace of AI deployment across enterprises is creating a monumental challenge for executives and company boards. In contrast to traditional IT systems, AI data and related ecosystems, which encompass everything from LLM models and training data to custom prompt data, have emerged as valuable intellectual property. They often represent millions of dollars in investment and months or even years of engineering effort.
Artificial intelligence
Artificial intelligence
fromMedium
2 months ago

What if AI lies about you?

AI-driven summaries often present confident but incorrect information about people; interfaces must show uncertainty and provide ways for individuals to correct false personal data.
Medicine
fromNature
2 months ago

How DeepMind's genome AI could help solve rare disease mysteries

AlphaGenome uses AI to predict effects of non-coding DNA mutations, helping interpret previously triaged variants and aiding diagnosis of undiagnosed rare diseases.
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