#spina-bifida

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#scoliosis #spinal-surgery #waiting-lists #childrens-health-ireland #grandparenting #family #caregiving #illinois
NYC parents
fromwww.businessinsider.com
3 days ago

I started raising my grandson just a few months into my retirement. My wife and I want to give him a good life, but it's financially draining.

Martin Odum and his wife are raising their grandson Noah, who has spina bifida, after previously raising their granddaughter.
Medicine
fromNature
1 month ago

World-first stem-cell therapy shows promise for treating spina bifida in the womb

Placenta-derived stem cells applied to exposed fetal spinal cords during in utero surgery show safety and reverse hindbrain herniation in myelomeningocele cases.
#spinal-surgery
more#spinal-surgery
fromwww.london-unattached.com
2 months ago

Guess How Much I Love You? at Royal Court Theatre

I will arise and go now, for peace comes dropping slow, reads the male lead to his bed-bound partner and their dying, severely disabled newborn boy. These lines sing out in Guess How Much I Love You?, Luke Norris's new play about a couple navigating the premature loss of their child. Yeats's words capture the play's driving emotional forces: the possibility of finding peace after such profound trauma, the lifelong burn of unexpected bereavement and the temptation to end it all.
Arts
Music
fromTODAY.com
3 months ago

Hospital Staff Bring a 12-Year-Old Swiftie to a State of Shock: 'I Cried and I Laughed'

Henry Hinson, a 12-year-old with spina bifida, relied on Taylor Swift's music for comfort and was serenaded by staff with a custom song.
Medicine
fromenglish.elpais.com
3 months ago

The unlikely path of a disabled athlete to the top of Mexico's parasurfing scene

Isaac Rendon overcame extensive surgeries and disability but faced persistent barriers to beach accessibility and exclusion from adaptive surfing competition.
#scoliosis
more#scoliosis
Public health
fromIndependent
4 months ago

Fionnan Sheahan: Incompetence or expedience? Why Simon Harris's scoliosis promise must be scrutinised in inquiry

A former health minister's decisions had life-and-death consequences for desperate families, exemplified by the death of nine-year-old Harvey Morrison Sherratt.
Public health
fromIndependent
4 months ago

Parents ramp up pressure for statutory inquiry into CHI after protected disclosure on care of Harvey Morrison Sherratt

A nine-year-old with spina bifida and scoliosis was mistakenly removed from the spinal surgery waiting list after being incorrectly classified as receiving palliative care.
Medicine
fromTODAY.com
6 months ago

Dad Tenderly But Firmly Coaches Son, Who Uses a Walker, To Overcome His Biggest Fear

A determined seven-year-old with spina bifida, guided by his physically trained father and medically experienced mother, overcomes mobility obstacles and inspires millions online.
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